One woman recently told me that when she shares her cancer diagnosis with friends, the friends often say something like, “You’re going to be ok, right?”
She went on to say, “In my support group, no one would ask that.”
Her friends’ questions are driven by fear. They want to be reassured that everything will be fine.
This puts an unfair burden on the person with cancer. Should you be honest, or should you be reassuring to relieve their discomfort?
Most of us develop responses along the lines of, “I’m taking it one day at a time and I’m hoping for the best.”
In a support group, you’re more apt to hear, “I’m waiting for the results on my next scan. Keep your fingers crossed.” Others in the group offer support, but they aren’t looking to be reassured.
Groups are also good for raising questions that are difficult to discuss with family members.
Just recently, one group discussed the question, “How will you know when enough is enough?”
When you’re living with advanced cancer, you generally remain on treatment for the rest of your life. Each treatment extends your life, but there are side effects of the treatment and the cancer itself can affect your quality of life.
At some point, many people wonder if they should continue with aggressive treatment.
This can be hard to discuss with family members because it affects them so much. It’s easier to raise the question with a supportive group of people who aren’t so personally invested in what you decide.
I’ve found that groups often serve as “practice runs.” That is, people can try out their thoughts before they discuss them with their loved ones and/or their physicians. The group is a safe and non-judgmental place to see how things sound when you first say them out loud.
Every support group is different, but they all provide a sense of community and a sense of understanding.
Reprinted with permission of the Ithaca Journal.
Original publication date: May 28, 2016
Bob Riter is the Executive Director of the Cancer Resource Center of the Finger Lakes. He can be reached at [email protected]
I have been recently diagonosed with Fallopian tube cancer. Trying to find others with the Same.
Been fighting bladder cancer since 2012 oct…many treatments..surgeries…infusions…I have recently stopped my infusion treatments…so much pain …no pain medication…quality of life.:000:zero
I was diagnosed with stage 4 stomach cancer february of 2015 with signet cell cancer. I’ve had 5fu..cisplaton and now irinotecan with 5fu. I also take a probiotic everyday along with essiac tea and I empty juice plus capsules in my green twice per morning. My blood counts stay good And my weight has stabilized. I still feel miserable during chemo week but the next week I’m ok. Gotta keep on moving and not let it get you down. I’m hanging on there for my loving husband.
I was diagnosed with stage 1V metastatic lung cancer in nov 2015. Did 3 rounds of heavy duty chem and spot radiation to brain for a single lesion. I had my lobectomy (upper right lobe) removed March 2016. Just. Had fu Ct of chest (clear) but MRI showed multiple brain lesions no Oncologist wants to do full brain radiation. Really scared about side effects. Im only 52 and worried about quality of life after all this radiation. Antobe in same situation. Greatful for today though. Had a beautiful walk on Jax beach in Fla. Guess I have to enjoy everyday and take. Nothing for granted. Thanks for letting me vent ….