April is Occupational Therapy (OT) Month- What is OT and how can it help you?

Posted April 8th, 2021

by Dawn Heiderscheidt, MOT, OTR/L, ECHM April is Occupational Therapy  Month! In order to celebrate this profession, it’s important to understand WHAT an Occupational Therapist (OT) is and how they connect to oncology. The American Occupational Therapy Association (AOTA) defines OT as “the only profession that helps people across the lifespan to do the things […]

Young Adult Cancer Awareness Week: Recognizing Adolescent and Young Adults Cancer Survivors

Posted April 5th, 2021

by Betty Roggenkamp, BFA, MSHC Imagine being between the ages of 15 – 39 and hearing the three words “you have cancer.” It happens to approximately 90,000 people in the United States every year. Right when life can be quite busy learning to adult or taking on the world of grownup responsibilities, you get slammed […]

Embrace Your Inner Flexibility

Posted March 29th, 2021

By Barbara Falkowitz my husband, Phil, was diagnosed with multiple myeloma (MM) 25 years ago, I was 43 and we had a 14 yr old and 9 yr old twins. I was juggling working in an accounting office, homework, after-school activities of three kids, along with household chores. Suddenly, I had to add researching treatment […]

Thank you!

Posted March 22nd, 2021

by Michael Riotto This year, I will happily turn 61 and celebrate, yes, celebrate the 10th year of my diagnosis of Multiple Myeloma(MM). Has it been easy?  Not a chance!  Has it been tough?  You bet!  Has it closed a whole lotta doors?  Absolutely!  HOWEVER, having this diagnosis has brought me to an entirely new place […]

The Caregiver Curve

Posted March 15th, 2021

by Kate Farrell I’ve Got This…  This month of March marks our 16th year of Multiple Myeloma action. That’s a long time….a lot of “action.” But of course, we didn’t know that when my husband, Doug, was first diagnosed. Early on the future was very uncertain. We did know that a cancer diagnosis was deadly […]

March is Colon Cancer Awareness Month

Posted March 11th, 2021

I am writing this blog for Colon Cancer Awareness month which is this month, March. March has always been one of my favorite months because of March Madness (NCAA basketball tournament). It is also the month when in 2000 then President Bill Clinton signed a White House Proclamation officially designating March as Colon Cancer Awareness […]

Resilience Isn’t About Bouncing Back

Posted March 8th, 2021

By Maddie Hunter I will never forget the words of my stem cell transplant doctor on that New York City summer day in 2001.  We spoke shortly after my arrival at the hospital.  He listened to me reviewing all the steps I had taken to be prepared, including the completion of my will and a […]

The OncoLife Survivorship Care Plan: An Educational Tool For Survivors That Has Educated Us

Posted March 4th, 2021

In April of 2007, OncoLink launched the OncoLife Survivorship Care Plan, a tool to create care plans for people who have survived cancer. As that tool reaches the milestone of 100,000 care plans created, OncoLink’s Editor in Chief Christine Hill-Kayser, MD, explains that we have also learned a lot from the users of the care […]

Multiple Myeloma Awareness Month: Inequity and Disparities in Multiple Myeloma Diagnosis, Treatment and Survivorship

Posted March 1st, 2021

March is Multiple Myeloma Action Month. This blog series will feature facts about this blood cancer as well as voices from the myeloma patients and caregivers highlighting the resilience of this community. Multiple myeloma is a cancer of the plasma cells found in the bone marrow. It makes up approximately 2% of all new cancer […]

Rare Disease Day: Raising Awareness for Rare Cancers

Posted February 26th, 2021

Every year on the last day of February, the world recognizes rare diseases—a day now known as Rare Disease Day. Rare diseases affect approximately 25 million to 30 million people in the United States each year. The purpose of Rare Disease Day is to educate the public and raise awareness among decision-makers about the impact of […]