Resource Round-Up: Let’s Win Pancreatic Cancer

Posted May 23rd, 2023

A diagnosis of pancreatic cancer can be devastating. Patients and caregivers can find it difficult to know where to find the best treatment and what that treatment should look like. This was the experience of Anne Glauber and her family in 2014. They did not know where to turn for information and care but knew […]

Aretha Franklin, Neuroendocrine Cancer, and the Invisible Man  

Posted August 29th, 2018

In a 2011 Interview, Ms. Franklin stated in her own words, “I never had pancreatic cancer.” The question is not, “did she lie?” But rather, “how is it that she told the truth?” And, the truth is, she had “neuroendocrine cancer,” which by pathology can only be itself.   Many neuroendocrine cancer patients feel invisible in a sea of other well-known cancers, as they struggle for a face and an […]

It’s Time to Bring Neuroendocrine Tumors (NETs) Out of the Shadows

Posted August 21st, 2018

Last week the world lost a music legend, Aretha Franklin. Many news organizations erroneously reported that she had passed away due to complications of pancreatic cancer. While Ms. Franklin was quite private about her health, she had spoken about her diagnosis on occasion. She actually did not have pancreatic cancer, but a neuroendocrine tumor in […]

NET Cancer: “If you don’t suspect it, you can’t detect it!”

Posted November 10th, 2017

November 10th is NET Cancer Day! What is a NET cancer?  NET stands for neuroendocrine tumors. These are rare tumors  found in the gastrointestinal tract, lung, parathyroid, thyroid, pancreas, adrenal and pituitary gland. Recent data suggests that the incidence of NET tumors has increased over the last thirty years, probably due to better diagnostic tests […]